June 24, 2009

Palliative Care

It is a natural reaction to try to stay out of hospital for any number of reasons. Mainly, I suppose to allay all the unreasonable fears that have built up in our complex brains over the years In today's world, this translates as a conviction that we will come out of hospital with whatever we went in with plus an added infection. At last I overcame these predjudices and agreed to spend a few days from last Wednesday, in a special unit at Whipps Cross Hospital. At first examination the Margaret Centre is beyond criticism. The patient is immediately put at ease and feels comfortable in the knowledge that he is the most important person around. Each room has two beds and my companion was a guy called Michael, who unfortunately has, as a result of Progressive Supranuclear Palsey (PSP), lost his power of speech. He is here in order that his wife, suffering from Parkinsons Disease, may get some respite at home. At this point I must break off and tell you another relevant story.

About 35 years ago, nearly half my lifetime, my son started his secondary education at Bancroft’s School. After a few weeks he struck up an enduring friendship with a boy called Christopher. This lasted until Cris left at the end of the summer term in July 1978. As is normal in all school relationships, the five year strong relationship breaks down after a while and both parties and their families follow their own career and social lives. Nina and I had met Christopher's family several times over the years and felt that we knew each other fairly well. Our only other connection with the family was that Christopher's younger sister became an assistant pharmacist and used to see us when we collected prescriptions. She left this job some 8 years ago and this finally severed any contact between our families.

The upshot of this story is that I felt truly priviledged to have been in the same room as Michael in that we eventually managed to communicate with our own sign language, and bought Neil and Chris together again after so many years.
What a strange world we live in!

I came home on Monday afternoon, and can honestly say that yesterday was the best day that I have had for months. They have switched and added various medications and the result appears to be working. This has been a long entry, so I will save some news for future entries. I must,however, thank everyone who has contacted me by phone, email or visit. I have not felt up to responding personally yet, but will do so over a period of time. Bless you all.

Posted by jeff at 10:08 AM | Comments (8)

June 10, 2009

Transfusion

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OK I'll have another pint after this one please

Yesterday I had another blood transfusion after a consultation with my oncologist. She put me on steroids to try to build me up again, but I am still in a lot of pain. Tomorrow I am seeing a Macmillan palliative nurse to discuss once again my pain managment. To be honest, I would like to get rid of it rather than manage it!

Posted by jeff at 05:12 PM | Comments (4)

June 04, 2009

Congratulations

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Yes, you are entitled to that one Carly

Well done Carly! We were delighted to receive the news that No 1 Granddaughter had obtained a 2:1 in her degree from Leeds Metropolitan University. It is great to get news like this when you are not feeling at your best, and I must try to get fit enough to travel to Leeds for her graduation next month.

Posted by jeff at 02:29 PM | Comments (0)